Insulin, a Rant!!!!

Several times a year my “Irish” gets up and I have to rant about the way Type-2′s are introduced to insulin therapy.  Or rather not introduced.  Given very little information or instructions at all! 

I’ve been a very active member of the ADA message boards for over eight years and have spoken to probably more than a thousand people over the years.  Every day it seems I hear another horror story about people being put on insulin with practically no information about it, and also sometimes no instructions even on how to inject it.  This is completely unacceptable in my opinion.  Insulin isn’t like taking a pill, and there are also different types of insulin that are for different purposes and act differently in your system.

So this post will mainly be some basic information about insulin.  It’s a shame you didn’t get it from your healthcare provider, but at least I’ll try to help you with the “mystery”.

There are basically two varieties of insulin:  Basal and BolusBasal is a long or intermediate acting insulin.   It releases small amounts of insulin into your system during long periods of time.  A normal body produces insulin 24/7 in this way to keep its functions working properly and keep the glucose numbers normal.  People with diabetes often don’t produce enough insulin naturally to keep this function working properly, so this is often the first type of insulin prescribed for a Type-2.  In many cases the person is also taking oral medication(s) and this basal insulin is to help supplement these.  It’s especially used to help with high fasting numbers and time when you aren’t eating.    The usual brands for this are Lantus and Levemir in this country.

These insulins do not work on food eaten.  They release in way too small amounts to cover food.  When taking these you still have to be very careful with the amount of carbs you eat or your numbers will remain very high. 

In an ideal situation the doctor will start you on a certain amount and then tell you to test and call in your numbers to see how effective the amount is.  Then the doctor will adjust the amount until your fasting numbers are within range.  I say ideal because often people will write in saying that the insulin isn’t working.  I ask if they were given instructions to call the numbers in and they say no.  Grrrrrrrrrrr!  I then explain this and tell them to call the doctor and report the numbers.  Insulin isn’t like an oral pill, it takes time and experimentation to find the right dose for each person because every person’s body is different.  There are often many adjustments before the final dose is determined.  It almost never happens the first time.

Now we come to Bolus type insulins.  These usually end with a “log” such as Humalog.  They are meant to be rapid-acting and to cover the food you eat.  They are also sometimes used for “corrections” when numbers are high to bring them down.

These insulins usually start acting within 15 minutes of injecting them.  You’re supposed to inject them before you start eating and make sure you eat within 15 minutes.  The amount of insulin you use depends on the amount of carbs you plan to eat usually, but this also isn’t always explained to folks.  Some doctors just prescribe a set dose, not informing people that a set amount means you can only eat the amount of carbs that dose will cover.  A set dose is a very poor way to handle this type of insulin.  The best way is to experiment and find just how many carbs a unit of insulin will cover in your body.  This is called a carb-ratio, and it really does take a bit of work.  Once you do discover it, you can base the insulin dose you take on the amount of carbs you plan to eat.  This still requires carb counting and knowledge, but it works much better in controlling your numbers.  You do have to make certain that the dose you take is covered by carbs eaten, however, or you can go low(hypoglycemia).

I usually refer people to the book “Think Like a Pancreas” by Gary Scheiner.  It’s a book that explains all about insulin and how it works.  It’s also very easy to read.  Anyone using insulin should have this book in my opinion.  It also explains in great detail how to develop a carb-ratio, and how to do basal testing, things you really need to know and understand.

Many health plans cover instructions for insulin use.  The problem is that doctors don’t always recommend them.  Check and see if your plan does cover it. and if so insist on being referred to one.   This is your right.

Even with instructions I’m afraid that the main part of knowledge will have to come from what you yourself seek.  It’s a sad fact, but currently true for many type-2′s.

I believe insulin to be a great drug, I’ve used it myself for many years.  It does take a lot of knowledge and learning though, and as I’ve said, you’re usually on your own to find the information.

One other word.  A type-2 who starts on insulin does not become a type-1.  Type-1 is a completely different disease.  A type-2 never becomes a type-1, but is an insulin-dependent type-2.

End-Rant (for now)

Lizzy

  © EMO 4/12

Knowledge is Power

This entry was posted in Controlling the Numbers, Medications and tagged , , , , , . Bookmark the permalink.

7 Responses to Insulin, a Rant!!!!

  1. Élida says:

    what a great article! it’s really informative and innovative. keep us posted with new updates. it’s was really valuable. thanks a lot!!

  2. Elda says:

    great website my friend, this is an awesome post, keep them ideas coming up…good luck.

  3. BetsyWetsy says:

    Thanks Lizzy
    I do trust my PCP. He is very easy to talk to and he is a great listener.
    I guess I have to just keep doing what I’m told and keep reading yours
    and the ADA blogs.
    Talk to you soon
    Betsy

  4. Betsywetsy says:

    Hi Lizzy. I can’t tell you how much I appreciate your information. I am a retired
    Pharmacist and you give me more common sense info that I have from my training.
    Also, because I was a pharmacist, I thought I would be better prepared for this disease.
    But guess what? Not so. I am still baffled when my numbers don’t match what I expected. It’s like the whole disease has a mind of it’s own.. I almost wish I had been diagnosed earlier in my career as it would have changed my approach to helping my
    Patients.
    Also, what is your opinion of a family medicine MD managing this versus an endocrinologist? I can’t seem to get my FBS down to where they want it and I have only seen an educator once. It might be a situation where they think I know more than I do. I am beginning to believe I might need a small amount of insulin added to
    The Metformin ER that I am on. I am still tired most of the time and I am sticking very closely to what I should be eating. Ive lost 30 pounds and my sugar control is getting worse.
    Your thoughts and those of others would be much appreciated. Thanks

    • LizzyLou says:

      Hi Again Betsy,

      With Doctors I’ve learned over the past 10 years that it’s the luck of the draw. People think a PCP knows a lot about diabetes but that’s not always the case. They really can’t know everything about everything. If a good doctor feels he/she doesn’t have an answer they will refer you to an Endo. Not even all Endo’s know that much about diabetes, you have to find one who specializes in it.

      Having said that many people do fine with a PCP. Mine is one, and we do fine. I guess you just have to trust your instinct on if what they tell you sounds correct and how they deal with questions you might ask. You can always ask for a referral.

      Regarding your medication, remember that metformin takes time to become fully effective, sometimes months. You might also have it increased. There are also oral meds that stimulate your natural insulin production. So it doesn’t necessarily have to go to insulin, unless you feel more comfortable with that route.

      Morning numbers are the hardest for a lot of people. It can be frustrating. Did you read the DP post? Losing weight, while good if needed, is also mainly over-emphasized by both doctors and the media. Many people who have lost a great deal of weight still have BG issues.

      I guess the bottom line is that you have to have a doctor you can communicate with and work with. Not a dictator or “do as I say” type. Never be afraid to ask questions, after all you are the one paying their bill so they’re your employee so to speak. :-)

      Hope that helps,
      Lizzy

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